Much of the care that you are going to get as a mesothelioma cancer patient will be given in an outpatient setting, which includes home care. In many ways, home care for the person with cancer is no different than the home care that is given to people with other kinds of illness.
A mesothelioma patient will need help with diet and nutrition, physical therapy, home health aides, speech and respiratory therapy, personal care, emotional support, volunteer services, pharmacy, support from clergy, and other kinds of care.
Also skilled nursing services involving the use of an oncology nurse specialist, who is an expert in cancer care might be available for home care treatment of the mesothelioma patient. Many of these same services are also offered as part of hospice care.
Some of the home care services that could be provided for the mesothelioma patient are:
- chemotherapy
- immunotherapy or biologic therapy (which use different parts of the body’s immune system to fight cancer or lessen the side effects of some cancer treatments)
- blood products
- pain management
- antibiotic treatment
- nutritional support
- anti-emetic therapy (treatment for vomiting)
- hydration (giving of fluids, usually IV or through a feeding tube, for patients who cannot drink enough liquids). These infusion therapies can be given at home by home care agencies.
There are some points that you must consider if you want ton choose the best home agency for your care. You must first of all discuss with your health team to know the types of services you will need. Then you can find agencies that offer those services.
Find out about the accreditation, licensing, and certification of the agencies that you are considering. Also ask questions about your prospective agencies quality of cancer care, the type of experience they have with providing cancer care services, and the skills and training of staff at the agencies you are considering.
There are a number of questions you might ask when you’re looking at a home care service:
Certification
Are the home care providers that you are considering Medicare-certified? Medicare-certified programs have met federal requirements for patient care and management. Home care providers are closely supervised and controlled. Medicare certifies only agencies with skilled nursing care. To find a Medicare-approved home health agency, you can visit “Home Health Compare” on the Web at www.medicare.gov. This helpful tool is listed under the search tool “Compare Home Health Agencies in Your Area” on their home page. It gives you names, addresses, and phone numbers of nearby agencies. You can also look at quality measures and compare how well the home care agencies deal with common health problems.
Accreditation
Is the agency you are considering accredited by a nationally recognized accrediting body, such as the Joint Commission? You can look up the agency on the Joint Commission Web site at www.qualitycheck.org. The Joint Commission is an independent, not-for-profit organization that evaluates and accredits health care organizations and programs that volunteer for their review. Accreditation is an important measure in selecting quality health care services. You can ask to see the results of the home care agency’s most recent Joint Commission survey.
References
How many years has the agency been serving your community? Can the agency give you references from cancer care professionals, such as an oncologist, oncology nurse, cancer center, or an oncology social worker, who have used this agency? Ask for names and phone numbers. A good agency will give these to you if you ask. Talk to these people about their experiences. You may also wish to check with your local Better Business Bureau, your local Consumer Bureau, or the State Attorney General’s office. They can tell you if complaints have been filed against the agency.
Licensure
Is your prospective care provider licensed by your state?Most states require licensing of home health agencies.
Consumer information
Does the agency have written statements that list services (including cancer care services), eligibility requirements, costs and payment procedures, staff job descriptions, and malpractice and liability insurance? Ask that they send you any brochures or other information they can share about their services.